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First diagnosed with UC, now with Crohn's


Fri, March 30, 2018 8:48 PM

Hi all! I'm 34 and diagnosed with Crohn's just 4 days ago on 3-27-18. I will try to keep this as short as humanly possible and keep it simple to follow. 

~2007 I had my first colonoscopy due to bright red blood and some mucus when having a bowel movement (my only 2 symptoms). I was diagnosed with Ulcerative Proctitis (inflammation was limited to my rectum area) and given Canasa Suppositories which cleared me up in no time. No issues again until fall/winter of 2015.

~2015 Same symptoms as in 2007. Bright red blood with some mucus (my only 2 symptoms). I had another colonoscopy that showed inflammation in my rectum. However, this time, although the rest of my colon looked healthy, the biopsy showed non-active disease a little bit higher up. Still consider Ulcerative Proctitis, possibly left-sided colitis) This time I was put on Lialda (1 pill a day). Cleared up, and stopped the Lialda. No issues until the following fall/winter of 2016

~2016 Exact same symptoms as above, took the Lialda, it cleared up. No issues until the following fall/winter of 2017.

~2017 Bright red blood, mucus, but this time....I'm going to the bathroom a lot more (diarrahea) and am having urgency. The Lialda is not working. Doctor increase Lialda to the max, and prescribed Rowasa enemas for 2 weeks. After just the FIRST DAY of the Rowasa, ALL symptoms went away. After 2 weeks of enemas, and 4 weeks of max Lialda, doctor told me I was all good and could stop all medicine. After a week off of the Lialda, mild bleeding came back. Doctor scheduled a colonoscopy and endoscopy. Endoscopy was normal. Colonoscopy showed inflammation in rectum area (what we excepted), but also showed a small inflammed area at the other end of the colon. Normal areas in between. I now have Crohn's.

THE ONLY symptoms I have ever had was bright red blood, mucus, urgency, and loose/diarrhea bowels. I suppose I should be thankful. But I have A LOT of questions. My doctor encouraged me to get a second opinion so I see that doctor on 4.19.18. I am on Lialda until then. He mentioned Humira and another type of injection and I just was SHOCKED at what type of treatment I will have to do. I'm scared of the side effects. I FEEL good, I don't want to do treatments if it will make me feel sick all the time. 

For now...I just wanted to share my story. Is this normal to have Crohn's with only these very mild symptoms? What can I expect? Are the injections worth it?

Any advice, comments, opinions are very, very much appreciated!!!!

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