Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

4 year old with Crohn’s- diagnosed today


Thu, July 05, 2018 4:01 PM

Hello,
My four year old son was diagnosed with Crohn’s disease today after he had a colonoscopy and an endoscopy. He also had three large polyps that were removed and sent to a biopsy. I am mortified obviously. He isn’t showing much signs of pain, but loose stool, anemia, poor growth and blood in his stool. 

I am looking for similar cases and parents of young children that I can talk to regarding the disease and choice of medication. 

FPO Ifatgolan
Joined Jul 5, 2018

Wed, August 22, 2018 3:42 PM

Reply posted for administrator.

If you are interested in peer to peer support from other parents and not finding a support group in your area consider signing up for the Power of 2 support program.  It is for individuals seeking to talk by phone to other patients or caregivers with IBD. If you are interested in signing up for the Power of 2 program, please e-mail powerof2@crohnscolitisfoundation.org or call 888-694-8872 x 8 to learn more. 

FPO administrator
Joined Oct 12, 2017

Sat, August 18, 2018 5:40 PM

Reply posted for Ifatgolan.

Ifatgolan My family is in the same boat. We have a 4 year old little girl, just diagnosed 7 days ago. It is concerning, and very scary. She is also having lots of issues with cavaties due to not getting all the nutrients that her body needs.

FPO Mccamants
Joined Aug 18, 2018

Sat, July 14, 2018 10:18 AM

Reply posted for Ifatgolan.

I would also like to talk with parents.
Please feel free to contact me.
regards,
Uday.

FPO yub2204
Joined Jul 14, 2018

Related Topics

Crohns Qs new hair loss a...
Author Image ghand17
Joined Oct 23, 2022

I am also newly diagnosed. I was put on Inflectra ....

read more

Is it possible to go undi...
Author Image alex101
Joined Feb 12, 2023

I was diagnosed with RA, Psoriasis, and IBS when I....

read more

Can IBD be detected in re...
Author Image Tsf57
Joined Feb 22, 2023

I’ve suffered with IBS/IBS symptoms for many....

read more