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Surprise Crohn's Diagnosis


Tue, July 10, 2018 9:35 PM

Hi there! I just received my diagnosis of Crohns, which Im actually quite surprised about. So Ive always had tummy "troubles" of bouts of constipation, excessive gas (like horrible, horrible constant gas), hemorrhoids, etc. Always attributed these things to something else. So a few months ago, I got this horrible "stomach virus" that wouldnt go away; horrible upper abdominal pain that radiated into my back, vomiting, diarrhea and was sent to the ER from the urgent care where they discovered my lipase levels were extremely elevated. I was diagnosed with acute pancreatitis and referred to my GI doctor. After doing scans and tests, he chalked up pancreatitis to a viral infection and told me it shouldnt return. When all this started, I also began having constant rectal bleeding and casually mentioned it when they were trying to find the cause of the pancreatitis. I didnt know if it was relevant or related. He seemed quite concerned about it, I convinced myself I had really really bad hemorrhoids, lol.Fast forward, the pain returned and rectal bleeding got worse. My GI said something about Crohns but I dismissed it since I didnt have constant diarrhea. He ordered an endoscopy and colonoscopy. After those, biopsies, and more lab work, I was diagnosed with Crohns. Wow. I always thought Crohns involved horrible diarrhea so I never thought it could be that. Im starting budesonide (sp?) and am kind of worried. I took prednisone once and didnt do well on it. Im just looking for support and advice and see if anyone else has had some not-so-common symptoms? Or if anyone was first diagnosed with pancreatitis or something else before Crohns? Or if anyone has taken budesonide and any side effects, effectiveness, etc.? Or anything really!

FPO kpitch
Joined Jul 10, 2018

Tue, October 23, 2018 2:02 AM

Reply posted for kpitch.

Hi, I was diagnosed with Crohn’s a couple of days ago. I’ve been prescribed Budesonide but I’m hesitant to take it having read the side effects. How did it go for you? Nervous deck here indecision

FPO nazzy
Joined Oct 22, 2018

Sun, September 16, 2018 5:44 PM

Reply posted for charbs.

Hello! You are not alone. I was just put on Prednisone, had initial symptoms like you had, excessive horrible gas literally for years. Thought I just had lactose intolerance or ibs. Left side pain ( slight) started about 6 mo ago. 6 weeks ago diarrhea daily. 4 weeks ago bloody diarrhea, 20 lbs weight loss and cramps. ER and diagnosed with colitis, colonoscopy and now they think it's Chrohns. Did your symptoms get better with the meds? How are you doing?

FPO quincycat
Joined Sep 16, 2018

Mon, July 16, 2018 9:58 AM

Reply posted for kpitch.

It usually takes a day or two.

FPO charbs
Joined Oct 31, 2016

Sun, July 15, 2018 7:00 AM

Reply posted for kpitch.

What's the point of having a community if nobody responds?

FPO kpitch
Joined Jul 10, 2018

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