Hello everyone!
I was just recently diagnosed with Crohn's Disease (for sure) this past week and was started on both methotrexate and Remicade. The doctors kept saying I was very atypical in the sense that I have never experienced any symptoms of Crohn's disease before. The only symptoms presented was a family history of Crohn's and a fistula (which healed after surgery.) Anyways, after two days in the hospital my abdominal pain (which I had rated about a 4) completely went away before even starting medicines.
Since then I've started my treatment but I continue to have all these bombarding questions in my head and would love to hear from a community of individuals just like me!
First and foremost: Is it common for patients to never truly show symptoms and then all of a sudden have abdominal pain. Following this, is it common for a flare up to only last for two days and to go away without medication? (I really just want to know how atypical or typical I am...)
Regarding diet, should I maintain my normal course of foods and log what I eat to notice certain patterns. Since my pain subsided in the hospital I haven't experienced anything quite like it even with a normal diet. I feel very blessed I'm not in any pain (as of now) and hope this continues. It's scary moving forward on this path (especially for my parents since I move into my dorm at UCLA tomorrow.) Sorry for the long post, but any feedback and inquiries you can provide will help me feel at ease and better about my future moving forward. Thank you all so much!!
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Fow what it's worth, I've also been a vegetarian / vegan for 20 years, so I had 7 years as a vegan before I even started seeing symptoms of Crohn's. I can say that in my case, what I eat does not seem to play a very large part in triggering a flare-up, if at all. If anything, it's when I'm flaring up that I have to make exceptions to being strictly vegan, because it's really difficult to avoid fiber on a vegan diet. And it's fiber that, more than anything else, causes me pain if I'm already in a flare-up, and worsens my symptoms. While in remission, though, it doesn't really seem to matter.
That all said, I'm not a vegan for health reasons anyway. Vegetarian diets are no more healthy than omnivorous diets. Healthy eating is all about balance. If anything it's slightly more more difficult to maintain that kind of balance on any kind of restricted diet, but it's much easier now than it ever was due to fortified plant based foods that never used to exist.
Reply posted for kumputer.
Hey! I was recently diagnosed with Crohn’s also and wasn’t having a lot of the more prominent symptoms. I had been misdiagnosed with HPV for a year and when I was under for surgery to remove what they thought were genital warts the surgeon saw two large fissures and realized what I actually had was inflammation in the form of a skin tag as a result of the Crohn’s.
My doctor actually told me the that I was the healthiest looking Crohn’s patient he has had. What I chalk it up to is a vegetarian diet and taking Juice Plus capsules for the past year. I think they’ve been really vital in making sure I’m getting the phytonutrients my gut needs in order to combat inflammation. I’ve been thankful since I got the diagnosis for my friend introducing me to them because I have no idea what kind of shape I would be in right now if it wasn’t for the extra nutrition boost.
Hope this helps!
Reply posted for Reikones.
I believe the answer to all your questions is yes. IBD can be very unpredictable. People go into spontaneous remission all the time. But individuals often get accostomed to their own disease's patterns. Diet, expecially during a flare-up, can have an effect on your symptoms. Some people experience more effects from diet than others. If you suspect diet has a significant effect for you, you may benefit from keeping a food journal. Just remember that we as patients all share some things in common, but each one of us has a different set of challenges.
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