Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Anyone out there?

Tue, December 11, 2018 2:29 PM

Hello. I was recently diagnosed with CD. However, there is apparently a sub category of the disease called Crohn's colitis. This is what I've been diagnosed with. It seems that I suffer from a combination. It all started about a year ago. I had noticed that I had been having a bad case of hemorrhoids and gas all the time. The gas would smell horrible. My family was disgusted to say the least, lol. Anyway, I always knew something was wrong. I was actually thinking IBS. Fastforward to the beggining of this year when I woke up in excrutiating pain in my stomach. I ended up going to the emergency room and having emergency surgery. I had an adhesive band leading from my uterus to my intestines (this is probably TMI seeing as how my GI doc says that it wasn't a result of my current situation). Anyway, I had my three year colonoscopy exam and the doctor found colitis. This was at the end of July. They did a biopsy and two weeks later I was told I had IBD. I said "do you mean IBS? The nurse said no and we scheduled an appointment with my GI. It was Crohn's with the subcategory of Crohn's Colitis. I experience the majority of the symptoms most of you have. Whether you have CD or UC. The one thing I haven't read is anyone who has the diagnosis that I have. It's kind of hard trying to figure out what to eliminate and what I can eat. My family doesn't fully understand yet because I don't. I'm getting there though. I'm glad I connected with this community. It helps some. I'm relying a lot on God. He is my physician. Is there anyone else out there?

ladyross
Joined Dec 5, 2018

Tue, December 11, 2018 6:08 PM

Reply posted for ladyross.

I haven’t exactly had the problems you’ve had, but there are similarities. Originally diagnosed with ulcerative colitis, I passed so much blood I eventually had to have 23 pints transfused. I had the colectomy with j pouch surgery. Then I had adhesions on my rebuilt colon and had to have surgery. I had recurring pouchitis which eventually turned into Crohn’s disease. Just had an Entyvio infusion today, which I don’t think does any good. The crohns sucks, but the colitis was much worse. Good luck to you, it’s certainly no fun to deal with.

charbs
Joined Oct 31, 2016

Related Topics

Crohns Qs new hair loss a...

ghand17
Joined Oct 23, 2022

I am also newly diagnosed. I was put on Inflectra ....

read more

Is it possible to go undi...

alex101
Joined Feb 12, 2023

I was diagnosed with RA, Psoriasis, and IBS when I....

read more

Can IBD be detected in re...

Tsf57
Joined Feb 22, 2023

I’ve suffered with IBS/IBS symptoms for many....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with CCFA.org and is supported by an educational grant from AbbVie.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.