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Son recently diagnosed with UC - and he's a picky eater!


Sun, January 06, 2019 11:23 PM

My 14-year-old son was recently diagnosed with UC. He is a super-picky eater - doesn't like meat, eggs or cooked veggies. I am extremely worried about how to get enough protein in his body. He is a cross-country runner, so very slim, and in the last 2 weeks (prior to diagnosis), lost 8-10 lbs. I appreciate any suggestions you may have for getting picky, UC teens to expand their palettes. Thanks much!

FPO theraven8413
Joined Jan 6, 2019

Wed, August 04, 2021 3:15 AM

Reply posted for kelliwithchrons.

Any other reaction to this?

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FPO Almaza2123
Joined Aug 4, 2021

Wed, July 07, 2021 12:15 PM

Reply posted for theraven8413.

Hi. I was diagnosed with UC when I was 16 and was/am a very picky eater. I'm 51 now. Back when I was diagnosed in the 80's the resources were very limited and I know my mother did the best she could. She would make egg-shakes and let me eat what I wanted just to try to put on and keep my weight - I was 5'6" and 100lb. In my 20's I ate lots of steak, potatoes, breads, pastas and other carbs. Food that was easy for myself to make and what I liked to eat. I was on Asocal and prednisone from 1986 - 2003.  

I went into remission, and I'm still in remission (knock on wood), when I was 32 (still on meds, but not steroids). All of the eating habits that I learned trying to keep on weight helped me put on 60+ pounds very quickly - 170 lbs - and I was told to lose the weight. About 4 years ago I was diagnosed with Type 2 Diabetes.

It's been very difficult trying to change my diet. Processed food - bread, potatoes, crackers - have been my mainstays to keep my stomach settled. I cut out all sodas which has been a great help. But I'm still very picky and the normal methotrexate that is prescribed for Diabetes adversely affected the UC. Now I'm fighting my bad diet habits at 51. And it's one of the biggest hurtles I've had. 

 
I look back and ask "what could I have done early on that would have prepared me for this?". 1) I wish I had the resources available now; 2) I wasn't so deliberately stubborn; 3) I had a counselor that I could talk to outside of my family; 4) a nutritionist that could help me and my mom build a healthy diet for me that I would eat; and lastly 5) friends my own age going through the same thing.
 
Good luck to you and your son. Don't worry - you're doing the right thing asking and looking for help/assistance. 
Mary

FPO seiryram
Joined Jul 7, 2021

Wed, August 14, 2019 3:35 PM

Reply posted for theraven8413.

I feel for you.  My son is 13 and diagnosed with crohns only a few weeks ago.  He too isn't a great eater as he has SED/ARFID (selective eating disorder/Avoidant/Restrictive Food Intake Disorder) or whatever it's referred to now.  He only eats chicken, popcorn shrimp, pizza, spaghetti and grilled cheese as main courses.  No fruits, no veggies.    Since starting on prednisone 3 weeks ago, he's gained 10lbs but he can't stay on that forever. He's also taking vitamins and I make him shakes using carnation instant breakfast powder. I second the suggestion of finding something he likes that doesn't bother him and letting him eat as much of it as he can.  

FPO NwTnMom
Joined Aug 14, 2019

Mon, January 21, 2019 2:34 PM

Reply posted for theraven8413.

You might go to a health food store and look into those protein shakes bodybuilders drink when they want to gain weight.  I’d run it by your doctor first.

FPO charbs
Joined Oct 31, 2016

Mon, January 21, 2019 12:41 PM

Reply posted for theraven8413.

I was diagnosed with Chron's at 16 and am now 18. I have always been a picky eater and I think I always will be. My advice is to find food, even if it is just one or two things, that will satisfy with your son's stomach and let him eat as much of it as he will. As for all the vitamins and nutrients, stock him up on multivitamins and calcium and anything else he is deficient in. Your doctor can do a blood test to see his vitamin levels and he can take anything he is low in by taking pills to get higher levels. 

FPO kelliwithchrons
Joined Jul 17, 2018

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