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Waiting for appointment....any ideas how to relieve symptoms


Mon, January 14, 2019 9:30 AM

Hi, 

I have recently been told I have IBD however. I have another 2 weeks to wait for my intial appointment. My symptoms are terrible and i was just wondering if anyone has any approches that can releive my symptoms until my appointment. Symptoms - Bowel incontinence, stomach cramps. mouth ulcers, blood in stools. 

FPO Jordan1106
Joined Jan 14, 2019

Mon, February 25, 2019 10:30 AM

Reply posted for Hayleyscomet.

I am interested in you saying you had tumeric in your soup.  I have had UC for 22 years and am in the middle of a mild flare up and was reading into tumeric tablets.  Bit unsure about taking something not prescribed by a Dr and if they are ok to take with current medication.

FPO Sharon66
Joined Feb 25, 2019

Tue, February 12, 2019 4:45 AM

Reply posted for Jordan1106.

Hey there!

I was diagnosed with Ulcerative PanColitis in April of 2017. Took the team of doctors around a year to finally get a diagnosis. 

Theres a lot of talk about diet, and that’s the most important thing. Really keep it bland with what you are putting into your body, pasta and white bread filled me up and made it a lot easier. Stay hydrated too, seriously you can never have enough water with IBD...

other than that, when I was in flare w/o meds, I had a lot of hot baths, I’m not sure if that was just me, but that was a nice short term relief. Stay positive, trust me, IBD/IBS blows, no doubt, but you feel much better if you just know the light is there. Easier said than done!

Best of luck to you!

FPO JacobEG
Joined Feb 12, 2019

Sun, February 03, 2019 12:10 AM

Reply posted for Jordan1106.

SCD, specific carbohydrate diet can relief symptoms and will keep you in remission.  Get educated! I did it for my son.  Food is medicine.    SCD really works!  But as always, always communicate with your healthcare team.  They do know abou SCD, trust me. Our GI Dr. is embracing it

FPO Ihatechrons
Joined Jan 31, 2019

Sun, February 03, 2019 12:06 AM

Reply posted for Jordan1106.

SCD, specific carbohydrate diet can relief symptoms and will keep you in remission.  Get educated! I did it for my son.   

FPO Ihatechrons
Joined Jan 31, 2019

Wed, January 30, 2019 8:10 PM

Reply posted for Crohnnie.

Keep a food journal to find out what foods hurt more than others.  Everyone is different but you can probably start picking up on some patterns and identify foods that you should avoid.  

If you don’t feel like eating then you should pick up some meal replacement shakes like Ensure.  I usually keep them on hand and go liquid for a few days if things are really bad to give my guts some rest.

My GI has me on a low residue diet.  It helps to minimize symptoms.  Stay away from things that are high in fiber or anything that has skins or seeds on them.  You want foods that are easy for your body to break down and digest.

Heating pads and hot baths are my faves.  If your tummy gets bloated then get some tums or Rolaids with an anti-gas Med in it.  Bloating sucks!  Be sure you stay away from any OTC meds that contain NSAIDS.  They can exacerbate your symptoms.

FPO Crohnnie
Joined Feb 1, 2019

Sat, January 26, 2019 7:44 AM

Reply posted for Jordan1106.

In the months leading up to my diagnosis of IBD I suffered similar and am suffering still from the same symptoms. I found that an anti diarrhea medicine slowed down the urge and lessened the bleeding. I also found an anti-inflammatory chicken soup that had turmeric in it and it’s honestly the only thing that has brought relief to my abdomen. I’m new to diagnosis and just started Apriso yesterday so I’m no expert and still have no idea what foods cause damage the most, but I would live on the soup if I didn’t hate leftovers. 

FPO Hayleyscomet
Joined Jan 25, 2019

Mon, January 14, 2019 11:10 AM

Reply posted for lwcrohns.

thank you for all this info, i have given the dr a call so fingers crossed for a cancellation x

FPO Jordan1106
Joined Jan 14, 2019

Mon, January 14, 2019 10:01 AM

Reply posted for Jordan1106.

Hello!

It is different for everyone, but I find Imodium, pepto bismol, and a heating pad extremely helpful when i am having rough days. My GI told me to not worry about taking imodium more than 3 days in a row if things are really bad, so I carry that in my purse. Same for pepto. 

The heating pad helps to relax the cramps in my stomach, and i keep that on medium for most of the evening and over night as it has a shut off timer so I can fall asleep with it.

Hope this helps!! You can also call the doctor's office to ask to be put on the cancellation list to try to get in sooner.

FPO lwcrohns
Joined Dec 17, 2018

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