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UC with onset of crohn's and joint pain

Wed, February 20, 2019 6:32 PM

I was diagnosed with ulcerative colitis with the onset of Crohn's by a colo/rectal surgeon in Dec 2018 after having colonoscopy/GI tract exam.

My stomach issues aren't as bad a some on here, but my main issue is with the joint pain in multiple locations.

I was put on the max dose of Liadla in Dec 2018 for 2 months, until I could see an actually Gastroenterologist. Liadla helped me alot but wasn't getting the job done.

I've been on prednisone for 5 days now, it's helped calm my stomach down.

My main concern is the joint pain and what is the best way to reduce it? so far the stomach issues I can handle.

Joined Feb 20, 2019

Fri, June 21, 2019 6:14 PM

Reply posted for smusgrave.

smusgrave what regimen are you talking about? Could you please share details? 

Joined Jun 21, 2019

Thu, June 20, 2019 8:28 PM

Reply posted for JohnL.

I just started an anti-inflamatory diet that is suppossed to help with joint pain.  I have had to make some modifications, such as no corn or nuts, etc., but it could be worth asking your doctor if you should follow this diet. 

FPO melodiegross
Joined Jun 20, 2019

Tue, June 18, 2019 10:51 AM

Reply posted for JohnL.

I would talk to your doctor about the joint pain. Did the joint pain come before the IBD diagnosis? If you aren't getting help with the joint pain from your GI possibly consider bringing your concerns to your primary care doctor or finding a rheumatologisgt to rule out arthritis or anything else inflammatory going on!

FPO betterbellies
Joined Jun 18, 2019

Thu, May 09, 2019 11:16 PM

Reply posted for JohnL.

Hello, when you were diagnosed did your doctor take biopsies? I was just diagnosed today with ulcerative colitis after a colonoscopy but then I found out my doctor did biopsies and trying to figure out why.

FPO Andy
Joined May 9, 2019

Thu, April 25, 2019 1:05 PM

Reply posted for JohnL.

I have been using CBD oil with .3%THC and it has helped my join pain tremendously.

Joined Apr 17, 2019

Sun, April 14, 2019 10:52 AM

Reply posted for JohnL.

Hi!  About 4-5 years before being diagnosed with Crohn's (in 2016), I had some "odd" migrating joint and tendon problems - severe enough to require steroid injections in both thumbs for de Quervain's syndrome (did not occur at the same time), steroid injection for trigger finger in middle finger of left hand (again, not occurring at same time as others), and a tendon release surgery of the right ulnar tendon (not carpal tunnel - affected my pinky finger, then tendon of which would get "caught" and my finger would get stuck, unable to bend without severe pain). 

Those issues occurred without about 2 years time, and I also developed eczema on the knuckles of both hands and parts of my scalp.  
I saw a dermatologist and was treated.  Separately from all of these other things, I also had some random erythema nodosum cropping up on my torso and legs (I didn't know what they were at the time). I had occasional episodes of urgent diarrhea - probably monthly or so, that I attributed to IBS and never got checked out. 

My PCP ran an ANA level which was very high, so I saw a rheumatologist.  However, he ran every rheumatological panel to look for inflammatory/autoimmune diseases, and aside from the very abnormal ANA, nothing was positive.  It wasn't until after I was diagnosed with Crohn's that I thought back on those kind of bizarre and seemingly random issues.  When I was diagnosed with Crohn's, I had been having severe neck, back, and hip pain, as well as these odd nasal ulcer-like sores.  I originally was on Humira and Methotrexate, but had to go off the Methotrexate because it was affecting my kidneys.  The combination of the two put me in remission, and I felt better than I had in years, and those nasal sores disappeared.  Now, being off of the Methotrexate, I'm not in remission, but not fully back to where I was.  

I hope to find another option for the Methotrexate that doesn't have a horrible side effect profile.

Anyway, the extra-intestinal effects of IBD can be debilitating, though hopefully if you get in remission, those effects will lessen as well.  Good luck!

FPO crisanderson
Joined Apr 5, 2019

Fri, March 08, 2019 3:44 AM

Reply posted for JohnL.

How your crohn's disease was diagnosed?

Colonoscopy can diagnose UC only with biopsy and which hospital did you visit?

I have Crohn's disease and it was diagnosed simply with a blood test and I also get joint pains but I am afraid of taking the immuno suppressant drugs like what you are taking because it can cause other infections like TB or even cancer.

FPO acharyamdclint
Joined Mar 11, 2019

Wed, February 27, 2019 10:26 AM

Reply posted for smusgrave.

8 oz very warm water

He said after a week, his symptoms had resolved. I decided, why not? After a week of the same regimen, my symptoms resolved as well and I have not had any sign of joint pain or stiffness since then. Maybe it's a coincidence. Maybe it's a bunch of malarky. But, it's the only common denominator. My 80 year old grandmother with terrible arthritis in her hands began the same routine two weeks ago and has experienced similar relief.

Hope this helps!!

FPO smusgrave
Joined Feb 25, 2019

Wed, February 27, 2019 10:23 AM

Reply posted for JohnL.

Joint pain sucks. I experience the same symptoms with my ulcerative colitis. The stiffness, the swelling, the limited range of motion. And it's been a cramp in my active lifestylfe for sure. I started a regimen a month ago after hearing about it from a patient of mine with rheumatoid arthritis. He was a very active older gentleman who had experienced a sudden onset of swelling and joint stiffness in his hands. After doing some research, he started drinking the following recipe every morning:

1 Tbsp Apple Cider Vinegar with Mother

1-2 Tbsp Honey (depending on how sweet you want it)

1 Tsp Cinnamon

FPO smusgrave
Joined Feb 25, 2019

Fri, February 22, 2019 8:41 PM

Reply posted for JohnL.

Hello, I read somewhere we should supplement with calcium because of the loss of bone density risk while taking steroids (Prednisone). Also, try sleeping with extra pillows around your body and in between your legs. Maybe try a 4 inch cooling memory foam and or a heated blanket. Joint pain sucks. I have it too. But having a restful night helps. What about relaxing baths? Hopefully, your doctor has answers.

FPO jenn718
Joined Aug 4, 2019

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