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Newly Diagnosed - Seem a bit different though

Mon, June 03, 2019 2:36 PM

Hi all,

I have just been diagnosed with Chron's after several tests. I have had months of Lose watery stools with some blood. And a stomach that will not settle. I am now on Budesonide have been for a week and seems to be helping me. Is Budesonide a long term drug and any experiences with this drug? After my Colonoscopy I was not really with it, and cannot remember what my Dr said.

However, I am a new diagnosis and relatively new to having symptoms (4 months) why I feel different at the moment (and fortunate) is I have not had any pain at all, just the stool issues. Has anyone experienced this? Am I just waiting for pain to start? Any help, guidance or tips really appreciative.

James

JamesW118
Joined Jun 3, 2019

Sun, June 09, 2019 3:28 PM

Reply posted for JamesW118.

I had ulcerative colitis and ultimately had a collectomy. Then I developed Crohns. It’s nasty, lots of diarrhea, occasional vomiting and tired all the time, but not really a lot of pain like with colitis. I chalk that up to not having a colon. I have had a lot of fistula problems and surgeries to deal with them and do get some stabbing pains in my butt, but that’s not the Crohns

charbs
Joined Oct 31, 2016

Fri, June 07, 2019 3:14 PM

Reply posted for JamesW118.

I understand the battle. I was diagnosed with Ulcerative Colitis at 14yo and suffered for 10 years with GI doctors that never explained how to heal or improve. I have no experience with that drug. I took prednisone, asacol, 6MP, Humira, and Remicade. True improvement happened when I changed my lifestyle. I have been medicine free for 10 years and did not have surgery because of natural medicine. First intervention is diet: remove common food allergens corn, wheat, gluten, dairy, eggs, potatoes, and alcohol. Avoid carageenan in milks and foods. Avoid sugar! L-glutamine, probiotics, omega 3, Vitamin C and E can all help. Castor oil on tummy every night with heating pad can help restore structural integrity. Exercise 3x per week to keep things moving and improve immune system. Find a holistic, naturopathic doctor. They will teach you how to improve your health and stay in remission. Hope this helps :)

cf
Joined Jun 7, 2019

Mon, June 03, 2019 3:44 PM

Reply posted for andrew 2012.

Thank you for your reply. I thought as much. I have a dose for 30 days.

JamesW118
Joined Jun 3, 2019

Mon, June 03, 2019 2:50 PM

Reply posted for JamesW118.

Whatever you do, DO NOT take budenoside long term. It is a corticosteriod and will cause numerous health issues if you take it long term. It is meant to stop a flare and to help you transition to a maintenance medication.

andrew 2012
Joined Dec 13, 2018

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