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I feel like a sucker

Fri, September 18, 2020 2:45 PM

Hi all. I've had Gut issues since 2009, seen every doctor under the Sun and been hospitalized several times through the years, when my Gut trouble flared up badly.

I have been Slow-Walked through ALL the hospital & Lab tests, and everyone agrees I'm suffering but NO ONE HELPS. All I am offered is MORE colonoscopies & more tests. I am now refusing. I've already had 10 colonoscopies and 5 endoscopies in the last 10 years and I've never had cancer nor any polyps, but I HAVE had 10 Ulcerations in my large intestine, which STILL did not net me any treatment. They all seem content, to let me go home to suffer.

Is anything helping anyone? Stelara? Remicade? Anything? I have an appointment in October to see a doctor in Denver (she's my last hope), and I'm Leading with my request FOR TREATMENT. What I want, is for her to try me on one of the UC/IBD medications that have come out in recent years, and NOT to go on a months-long Hunt, looking for an exact Diagnosis (which I know will be too hard to get). NO more colonoscopies...this has been ridiculous. Every time I submit to this now, I FEEL LIKE A SUCKER.

Someone please HELP! I need relief from the Pain, Pressure & Sickness which haunts me daily. I am CHAINED to the toilet in my little condo, and I do not dare go out! I need the Magic Words from someone, to unlock the Stubborn refusal I've received from all my previous doctors. I know they are all too afraid to Treat me, as they don't want the Risk.

ArrEll
Joined Sep 18, 2020

Wed, September 23, 2020 2:14 PM

Reply posted for ArrEll.

Hi. I am 19 and i was recently diagnosed with UC. I started with synthomps (all) in may and at this month the only thing I know is the diagnosis and that i am still on a flare, and that the medication i was prescribed with it is not avaiable in my country. I have went to the hospital a few times and all they say is: you have a chronic disease, you have to learn how to live with it, but i don´t think it is ok for anyone to live in constant pain and unable to do a normal life, even with a chronic disaese.

There are not appointments avaiable with a gastro, but i have found a bit of relief in alernative medicine. i am taking cbd, in a gluten free diet and avoiding milk products. This is not healing me and it is not going to stop my flare, but it makes my daily life easier to carry.

Maybe you should look for this kind of help, at least while you get decent medical attention.

Dg2803
Joined Sep 12, 2020

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