Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Unbearable Stomach Fullness - Progression?

Thu, November 12, 2020 10:02 PM

I've been dealing lately with what I worry is a progression of my UC. I was diagnosed 17 years ago, have handled pregnancies, lots of steroids, Rx changes, long flares, long remissions, but never the can't-think-of anything-else-due-to my-symptoms that I am now.

I deal with diarrhea (usually urgent) 8-9 times daily and have basically gotten used to it. I stay away from most all dairy, very little red meat, but probably eat more raw veggies than I should. However, of late, the fullness/feeling of a lead ball in my stomach after nearly any meal is horrible. I essentially just have to lay down with a heating pad after eating. My "digestion" is very audible (loud rumbles, painful cramps) and has become commonplace among my family.

My concern is 1- the symptoms no longer seem to just be confined to my intestines (which I'm used to), but incredible stomach discomfort as well. I am literally afraid to eat anything at all due to the inevitable pain/inconvenience;
2 - it's starting to cause depression. I feel uncomfortable most of the time and just not my self, leading to personality and activity changes;
3 - is this a progression? Or lack of symptom maintenance (although I take 4 Apriso daily . . )?

Sorry for the long post, but can anyone commiserate or offer advice? I'm desperate.

thanks

Gina20
Joined Nov 12, 2020

Fri, December 04, 2020 2:54 AM

Reply posted for espitzberg.

Hi Gina have you tried enemas???

Constipated guy
Joined Apr 26, 2020

Tue, November 17, 2020 6:44 PM

Reply posted for Gina20.

Hello,

Have you tried liquid diets for brief periods? I take a very simple smoothie made of oat milk and banana in the morning. Also have you tried bone broth, or, pureed soup?

Apologies if these are obvious recommendations. But I would be curious to hear if this is novel.

espitzberg
Joined Nov 17, 2020

Mon, November 16, 2020 11:06 PM

Reply posted for JoshuaModepc.

Thanks for the encouragement and advice, Joshua. Were you medically diagnosed at 9 years of age??

Gina20
Joined Nov 12, 2020

Sat, November 14, 2020 12:45 AM

Reply posted for Gina20.

hello, i have crohns. ive had it since i was 9 years old and am now 30.

i suffer from everything you have mentioned plus other problems. it is common to have these feelings. from experience i can tell you that stress has a huge impact on what you are dealing with. i suggest when things seem at its worse you switch to a strict ensure diet(vanilla is the best flavor imo) this will help your body get what it needs but also take a break from having to break down foods.

you know your body, trust your feelings and dont be afraid to be seen if you feel things are not normal.

generally as time pasts things get worse and not better but for what its worth you are not alone and i wish you better days ahead.

JoshuaModepc
Joined Nov 13, 2020

Related Topics

Crohns Qs new hair loss a...

ghand17
Joined Oct 23, 2022

I am also newly diagnosed. I was put on Inflectra ....

read more

Is it possible to go undi...

alex101
Joined Feb 12, 2023

I was diagnosed with RA, Psoriasis, and IBS when I....

read more

Can IBD be detected in re...

Tsf57
Joined Feb 22, 2023

I’ve suffered with IBS/IBS symptoms for many....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with CCFA.org and is supported by an educational grant from AbbVie.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.