Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

1st Eval in Fl (Scared to leave home!)


Sat, January 09, 2016 9:06 AM

I’m feeling very anxious about traveling for my 1st Evaluation appointment with Rheumatology & Gastrology in Jacksonville, FL. Sometimes I allow myself to be held prisoner in my own home, because I'm afraid of my unpredictable symptoms. I actually know ever amazing public restroom in my town, but I'll be traveling 6 hours away with no guarantee of a bathroom ASAP. I also get horrible nausea & "transition labor" like pain when my IBD flares up; which leads to hours on the toilet with vomiting as well. That is never pleasant in a public restroom! I'm scared of being stuck in a car. I've got "PRN" medications like Phenegren/Bentyl. Should I take them before we leave even if I'm non-symptomatic at that time? Should I avoid eating for 24 hours prior? What do you do to help you travel far from home?

Thankfully, my kiddos will be in fabulous hands while we are away. But I also hate the idea of being so far away from my boys. I’m not sure what to expect & was hoping someone might have some experience leaving town for a “Specialty” Hospital. I feel like I’m forgetting something….well, that’s a daily thing!! 
I would appreciate any advice on what to expect or items you wish you had brought or ways to manage symptoms while traveling. 
Thank you!! :)

FPO aphra
Joined Jan 9, 2016

Mon, January 09, 2017 1:30 PM

 Reply posted for aphra.

A little late for a reply but I had diahrrea 15 times a day always looking for a bathroom I stopped yeast WHITE BREAD DONUTS PIZZA And my diahrrea stopped and never came back once in a year now. What heaven.

FPO healer
Joined Dec 29, 2016

Related Topics

Camping with a flare up?
Author Image DPE
Joined Jul 31, 2021

Hey, I am off on an amazing trip across Scotland w....

read more

Stelara in Costa Rica
Author Image thomas2000
Joined Jan 24, 2022

I will be travelling to CR in the near future and ....

read more

Humira for TSA security (...
Author Image luciapastorino
Joined Jun 28, 2023

Dear members of this community, my name is Lucia,....

read more