Hello CCFA Community!
My name is David and I've had UC since 2011 when I was 18. As of May 2017, I got my disease (mostly) in remission with the help of Entyvio and Rowasa (yay)!
One of my dreams is to be able to travel around the world for months at a time, uninhibited by UC, which is currently not easy. Recently I discovered a good friend of mine (Alex) also has UC who has similar dreams.
He then created a project with a group of people to aggregate information necessary to empower us and others to take our life-saving medications in other countries.
We're currently gathering information on taking UC medication internationally and will be sharing it here and in other communities by the end of November 2018!
We're committed to having as comprehensive and detailed collection of data as possible and we'd love to hear other peoples international stories!
How did you get medication to other countries? How did you find infusion centers? What challenges did you face with insurance companies? Any and all information for international medication is valuable and will make an impact for us and others!
Thanks for reading and stay tuned!
Reply posted for dgarwin.
My team and I were able to do some research so far and we wanted to share it with you. We hope this is able to make a difference for someone! Please reply if you have any information to share and if this research helped you in some way!
The following are a list of countries we investigated for Entyvio, and whether or not they’re approved for UC/Chrons. Unless otherwise specified, items on this list are approved for UC/Chrons.
Argentina
Australia
Austria
Belarus
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