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Starting Stelara

Sun, February 19, 2017 10:47 PM

Hi everyone. I get my first dose of Stelara via IV this week, I was wondering if anyone had experiences they could share. I'm pretty nervous about taking it-mostly because I hate IVs but, any feedback would be great!

FPO npingel
Joined Feb 19, 2017

Fri, March 02, 2018 5:07 PM

Reply posted for npingel.

My insurance just approved Stelara for me this morning!  My infusion is next week and I am so nervous because I have tried everything else; Humira, Cimzia, Remicade, Entyvio...I hope it works because I have been miserable!  I hope it works for you too smiley

FPO KtheHobbit
Joined Mar 2, 2018

Thu, February 15, 2018 7:24 PM

Reply posted for npingel.

I was on Humira for several years and it appeared to control my symptoms pretty good. After a very rough patch of life some symptoms returned and he went ahead and took a look.... Found some inflammation and ulcers. Dr. felt the Humira was not working well and put me on Stelara. I unfortunately have not had good results with it, to the point that I now am looking at alternatives, Entivio or Remicade... I am actually considering going back on Humira thinking it may have been more about stress than the drug that caused the inflammation. But regarding Stelara other than it didn't do much for me I had no issues with the loading dose IV or any subsequent injections. No major side effects (maybe some fatigue) otherwise, no worries. I wish good/better luck with your treatment!

FPO altech
Joined Feb 15, 2018

Sun, December 10, 2017 7:19 PM

Reply posted for npingel.

How have you done on Stelara since February?

FPO wildanimalpark
Joined Feb 25, 2013

Mon, October 02, 2017 7:55 PM

Reply posted for npingel.

Hi, my doctor is trying to put me on Stelara if my insurance approves it, has it worked for you? What are the pros/cons? 
Im hoping this drug can help me get in remission. I hope all is well with you :) 

FPO izzy87
Joined Apr 10, 2017

Thu, September 21, 2017 10:40 PM

Reply posted for npingel.

Yes, started on Stellera almost exactly a year ago. I get it every 6 weeks for my Crohn's. I too started with the initial IV loading dose. Stellera usually makes you very tired for a few days after and sometimes I feel a little foggy headed for a couple days and get a slight headache, but it passes after a few days. Stellera helped slightly, but unfortunately I've still continued to flare and disease has spread, so going to try Iv IG infusions possibly next! Good luck to you, side effects definitely are not too bad, just be ready to be a little more tired.

FPO hringwald
Joined Sep 21, 2017

Mon, July 24, 2017 9:25 AM

Reply posted for npingel.

Hi- I'm starting Stelara end of this week. Can you tell me how you felt after the IV infusion and how things are going now. I have a very important event the day after the infusion and I'm already nervous and trying not to stress. Any info you can share would be helpful. I hope you're feeling much better and that Stelara is giving you relief! 

FPO marecare
Joined Dec 3, 2014

Fri, April 21, 2017 11:33 AM

Reply posted for racheljohnnie.

How was your experience

FPO Myers1994
Joined Apr 21, 2017

Fri, April 21, 2017 11:32 AM

Reply posted for npingel.

They are trying to
put  my son on stelera for crohnes.
How was your experience??

FPO Myers1994
Joined Apr 21, 2017

Wed, April 19, 2017 9:49 PM

Reply posted for npingel.

Last year I started remicade with little to no results. So far Ive had 3 Stelara injections and im already starting to see a big difference in my symptoms. I wish you the best of luck!

FPO racheljohnnie
Joined Mar 3, 2017

Wed, March 29, 2017 2:21 PM

Reply posted for npingel.

I start Stelara tomorrow. I'm sorta desperate and am hoping this works. 

FPO kmcm1412
Joined Mar 29, 2017

Thu, March 09, 2017 1:12 PM

 Reply posted for npingel.

HI! I also recently started Stelara and am looking for others who have started it and how it is working for them. So far it's been about a month and I've tapered from the steroids, but my symptoms have returned, so going back on a low does of steriods until the Stelara kicks in. Anyone else share their expreiences? 

FPO je1976
Joined May 13, 2008

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