Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Retention Enemas - your experience?


Thu, April 06, 2017 3:33 PM

Had my 2nd colonoscopy yesterday and went home with proscriptions for a retention enema and suppositories.  Ugh.  I've used suppositories before and dealt with it.  I haven't tried the enema yet but how in the heck will it stay in there.  I don't think it's wise to do it in my bed unless I get plastic sheets and find somewhere else for my poor (easily grossed out) husband to sleep.  Am I going to have to sleep on the bathroom floor?  I'm so disgusted by everything right now and just feeling pretty down about the whole situation.  Sorry.  I'd love to hear your experiences or tips on how to deal with having to use these things.  

FPO buttprobs
Joined Apr 6, 2017

Wed, April 19, 2017 1:54 PM

Reply posted for buttprobs.

Tell you the truth, budesonide  oral does not bother me systemicaly. So why in teh world would a physcian want you to do that when a capsule can do the trick?
Fire your doc

FPO capuchin
Joined Dec 22, 2016

Fri, April 14, 2017 2:30 PM

Reply posted for buttprobs.

It's not really that bad unless you're flaring really bad in which case the urge to release it it greater. It goes away after a couple minutes. Sometime it's helpful to warm it up under tab water (not too hot). Less discomfort this way.

FPO Hare
Joined Mar 22, 2017

Fri, April 07, 2017 10:24 AM

Reply posted for buttprobs.

Update, in case anyone else is searching for info on  experiences with Colocort enemas.  My fears were pretty unfounded.  Feeling depressed, I laid out a puppy pad under a towel  on the bed in the spare bedroom and followed the instructions.  Nothing leaked out, it didn't feel awful and was only slightly noticeable that I had put anything in there.  I was afraid to move for a while, but after 30 mins my arm was falling asleep so I adjusted and my fears of medicine squirting out all over the place did not materialize.  I'm going to sleep solo again tonight with the towel and puppy pad, just to be sure, but I'm fairly certain I will at least be able to sleep somewhat normally while I have to take these meds.  Side notes: 1) Excuse my misspelling of prescription earlier, 2)  Fun fact I learned while researching this:  some people take enemas for fun, even retention while walking around (which I didn't realize was possible).  While that was hard to wrap my mind around, it did make me a little less fearful.  

FPO buttprobs
Joined Apr 6, 2017

Related Topics

Starting Remicade Infusio...
Author Image shannonmiller
Joined Feb 20, 2023

I have Ulcerative colitis, am experiencing a bad f....

read more

Biologic- How to get it c...
Author Image orthopt2003
Joined Oct 8, 2021

Hello. My daughter 10 years old after almost 18 mo....

read more

Rinvoq
Author Image firestar
Joined Feb 26, 2014

Has anyone tried Rinvoq to manage their Crohn's sy....

read more