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Remicade and Drug-Induced Lupus


Fri, March 29, 2019 5:09 PM

I've was diagnosed with Crohn's about 5 years ago and have been on Remicade for about 4 of those years. My Crohn's has been maintaining fairly well on the Remicade and I'm finally in a good place. However, I've been having worse and worse reactions in the couple days after my Remicade infusions; joint pain, body aches, rashes, fatigue, etc. These symptoms start about 6 hours after my infusion and last for the next 24-48 hours. I've spoken to my GI, who drew an ANA and Anti ds-DNA, which were positive for Lupus. My GI doesn't want to change away from my Remicade yet, since I'm only having symptoms with infusions rather than continuously. As I've been maintaining well, I don't really want to change meds either. I'm just worried about if my symptoms worsen or any complications from the Lupus arise.
Has anyone else had a similar experience? If so, did you switch meds? I've already tried Asacol and Humira in the past, which didn't help. What other meds are available that aren't other TNF inhibitors?
Thanks!!
Kirsten

FPO kmketchersid
Joined Mar 29, 2019

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