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Thoughts/Experiences with Mesalamine?

Tue, June 18, 2019 8:22 PM

My doctor wants to prescribe mesalamine to me.....what are your thoughts about the medication as a maintenance drug?  How have you used it?  Do you use it if there is a flare and then discontinue once the flare is gone?  How long are your flares?  My first flare cleared up immediately upon using CortEnemas, but I've been on those since a month after my second flare started and then on prednizone and I'm going on 2 1/2 months of medication that isn't making my flare go away.....there are signs that make me feel as though my colon/sigmoid is healing, but I'm not completely healed.....are there other options?  TIA 

FPO Qurlypuff
Joined Apr 27, 2019

Tue, January 28, 2020 9:51 PM

Reply posted for Qurlypuff.

My daughter started it after 3 months on Budesinide. It didn't help her condition and 2 months after starting it she got pancreatitis. I've heard many people do well with it. It's a low risk choice usually. Just not for her I guess.

FPO Tlcunning
Joined Jan 28, 2020

Mon, January 06, 2020 11:46 AM

Reply posted for Qurlypuff.

Hi there. I got severe pancolitis. I was diagnosed in  March 2019. 
I used mesalazime pills but it didn´t work for me. For that reason the doctor prescribed me Salofalk 3g gastro-resistant prolonged-release granules 3.0g mesalazine daily- I took it for 2 months. Then I stopped taking it and the doctor prescribed it 2 months more. Rigth now, I am with rectal mesalazime as well as  aziathropine 2 pills a day (50mg each). Also I am receving a bological therapy
entyvio each 6 weeks. I have been taking entyvio for 5 months. My doctor says entyvio can be used in 6 weeks instead of 8 weeks due to my severity. It has been great for me becuase all the flares decreased, now I am in remission. I go to the bathroom sometimes once, or twice or three times, No more than 4 times a day without blood stool, this also depends on the food.
After I have expericing severe flares for about six months, in August 2019 since I stared receiving entyvio an mesalazime my symptoms are controlled.I still do not know how long do I need using entyvio but after experiencing the bad effects of infliximab 0-2-6 week I feel healthy now and with a lot energy. We just need to learn how to live with this new life condition.

FPO gandy124
Joined Sep 2, 2019

Sun, January 05, 2020 5:39 AM

Reply posted for SHELKINS.

I was wondering how the use of CBD oil with THC has worked for you?

FPO Askerjance
Joined Jan 4, 2020

Thu, December 12, 2019 5:06 PM

Reply posted for Qurlypuff.

I have been on mesalamine for 4 weeks.  The only side effect I have experienced is headaches, but ii is not completely controlling my UC due to the fact I have very severe pancolitis,  I was going to the bathroom 15x + a day including just passing blood at times.  I am doing alot better, but not good enough.  I still have some bleeding, inflamation and now I only have urgency in the morning when I first get up.

FPO Lorraine
Joined Dec 15, 2019

Sun, October 20, 2019 8:08 PM

Reply posted for Kjwf.

I have used Liadia for years with no problems at all. It was effective along with eating less fibe and seeds. After about 8 years I had to regularly take pertizone cycles. My gastro doc was leary of all the pertizone so I have been on Entyvio for almost 3 years now. The only problem I have is the healthy colon and 25 lbs of weight gain. My doc wants me to stay on Liadia and Entyvio. I have read that Liadia causes weight gain and just wondering if anyone has experience with this and if taking both drugs is really necessary?

FPO Mrunc136
Joined Oct 20, 2019

Sun, October 13, 2019 4:56 PM

Reply posted for SHELKINS.

Hi. How did your visit to the doctors go? Was it the right choice not to take the medication?

FPO Kjwf
Joined Sep 21, 2019

Mon, September 02, 2019 1:52 PM

Reply posted for Qurlypuff.

I took it for almost 10 years. It seemed to work relatively well -- until it didn't anymore. Currently looking for a new treatment. I didn't have any side effects from it.

FPO apbblue
Joined Sep 2, 2019

Wed, August 07, 2019 1:56 PM

Reply posted for Qurlypuff.

I've been on/off mesalamine for 12 years and it's the only thing that keeps me in remission. The only issue is getting my insurance company to approve it - it's expensive! But I really don't want to do Humira or Remicade. 

Mesalamine - Lialda and (back in the day, Canasa) have been the best options!

FPO SimoneAtHome
Joined Aug 7, 2019

Mon, July 29, 2019 5:56 PM

Reply posted for Qurlypuff.

I’ve been taking 800mg of mesalamine 6xday (actually I take 2 pills after meals daily).  I’ve been taking this for almost a year now.  Prior to taking this I was having horrible, frequent spells of nausea and vomiting.  Since I’ve been on this the vomiting has stopped completely.  I have had 1 bad flare and wound up in the ER with a script for a medrol dose pack which solved the problem.  However, my trip to the ER was due to excessive diarrhea that lasted a week.  I never vomited.  

The only problem i had was getting my insurance company to approve this drug. After 3 months of “run arounds” from the pharmacy and insurance company I finally got it approved.  My Dr. wanted to start me on this drug because she said it would work best in my condition.  It has been a life saver!  If your Dr is recommending it I’d give it a shot before some of the injections, etc.  

FPO Beckie
Joined Jun 7, 2019

Sun, July 07, 2019 1:35 PM

Reply posted for Qurlypuff.

Hi there! I have Crohn’s and was diagnosed in Sept of 2016, so almost 3 years. All the while taking Pentasa (Mesalamine). I’ve had great success staying in remission up until recently... my flare caused me to have a Uveitis flare in my eyes as well as come down with C-diff. I would recommend Pentasa if you have mild inflammation but we are currently looking into the next tier for me to subside all inflammatory responses. Hope this helps & good luck and stay strong!!!

FPO Cleshon
Joined Jul 7, 2019

Mon, July 01, 2019 7:41 PM

Reply posted for SHELKINS.

Works well for my wife once in remission, it keeps her in remission but when she has a flare it’s like it’s not even there. Hers are the suppositories so low side effect profile 

Joined Jul 1, 2019

Fri, June 21, 2019 9:27 PM

Reply posted for Qurlypuff.

I was diagnosed with UC March 2019. After prednisone for a month, doc prescribed mesalamine. I have decided not to take it and use a CBD oil with THC in it. And control my food intake to foods that don’t cause me inflammation. I go back in a week to see if the ulcer in my stomach has healed. So that will be a good indicator if my choice was the right one. 

Joined Apr 17, 2019

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