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Tue, September 10, 2019 6:29 PM

I have been advised to get a resection of my terninal ilium.  I have Crohns and I have had it for forty years.    I am currently on  humira.

Can anyone share their experience with having a resection for Crohns?  I feel scared to have this operation.
                     Thanks,  Sue

FPO susan winsberg
Joined Aug 20, 2019

Thu, November 21, 2019 6:09 AM

Reply posted for susan winsberg.

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Thu, November 21, 2019 6:09 AM
Sun, November 17, 2019 12:28 AM

Reply posted for susan winsberg.

I had resectioning oct 2018 at mayo in Rochester mn. It was kinda tuff first few days and had a ng tube. Mayo did it robotically which was great. Sometime after surgery I contracted ecoli and spent 6 months trying to get rid of it. I was on cipro for so long that I ended up with an infection in my esophagus, so took meds for 21 days to get rid of that. In july when I was finally clear of ecoli I started having kidney stone issues. They wouldn't pass. Finally at the end of September the stones had grown to 8.5 mm. I ended up with a stent until just last week only because my whitecount was too high to blast stone. Mayo said the ilium resectioning is very much the cause of stones due to that section being a significant part to digesting nutrients. Now I'm trying to figure out how to reduce/eliminate getting kidney stones. I also started stelara around july. Makes me feel ill the first day. I've failed all other biologics in 14 years. I've focused on diet, eliminating coffee...I miss it. The resectioning also cause me to not produce enough bile to digest food so I started on a powder called questran but I hated it so mayo suggested a pill medication and it is wonderful. It's been quite a journey after surgery. Worth it, yes...but more issues to deal with.

FPO Tina0224
Joined Nov 16, 2019

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