Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.


Wed, November 06, 2019 3:19 PM

I was diagnosed in 2012 with UC. Since then I have tried Sulfasalazine, 5-ASA, steroids, and currently am using Humira. Nothing has ever made any difference in my symptoms and now my GI is recommending Entyvio. I am hesitant though as I have read many horror stories about side effects with this drug. Does anyone have personal experience with Entyvio they wouldn't mind sharing with me? I feel like I don't have many options left and would like to feel more confident in my choice. 


FPO louisebelle
Joined May 24, 2018

Thu, November 28, 2019 5:16 AM

Reply posted for louisebelle.

Hey there! I have been on entyvio for a year now. It has worked however, every infusion I suffer from many many side effects including the infections or colds that follow since it weakens your immune system. Just make sure you wash and sanitize your hands vigorously and I wear a surgical mask in places I know I will be a while in. Especially when im at work but only because I work in retail and we have tons of sick customers that come in. I am however working with a holistic doctor to eventually get off this medicine. I do not feel it is healthy and has increased my quality of life. Yes it has stopped the symptoms but it has created a million other symptoms so I want off of it not to mention the potential risk of getting PML or cancer no thank you. I am doing bone broth daily (heals your immune system) enzymes(gives me energy and non addictive) artichoke extract (helps my gallbladder function properly again) I swear that I have felt 100 times better doing this. Plus regular exercise and proper eating meaning protein based foods, water, and gluten free foods have enhanced my life so much! I hope this helps :) if you decide to do entyvio just remember there are other options too.

FPO Bohonerd
Joined Oct 17, 2019

Mon, November 25, 2019 8:04 PM

Reply posted for louisebelle.

I just started this medication and I am feeling better. No side effects thus far.

FPO berlyndaniel22
Joined Nov 25, 2019

Thu, November 21, 2019 9:34 AM

Reply posted for louisebelle.

I have been on Entyvio for a year and according to my doctor I am now in remission. I have had no issues or side affects from Entyvio. I hope you have the same outcome from taking this drug.

FPO Teddybear71
Joined Nov 21, 2019

Wed, November 06, 2019 6:02 PM

Reply posted for louisebelle.

I haven’t had any problems with entyvio other than psoriasis, which is not listed in the possible side effects, but is for remicade which I used to be on.  They are similar drugs so i’ll blame the entyvio.  I’ve had psoriasis for years but this is much worse. It started in my feet and worked its way up my legs, plus on my forearms.  

FPO charbs
Joined Oct 31, 2016

Related Topics

Newly diagnosed deciding ...
Author Image alexdshook
Joined Jan 23, 2020

I was very recently diagnosd wth Crohns (small bow....

read more

Imuran vs. Remicade/Humir...
Author Image nmiller004
Joined Feb 14, 2020

I am a 45 year old female newly diagnosed with Mod....

read more

Corona Virus and Remicade...
Author Image Jennie RC
Joined Mar 21, 2020

Hi all, I'm facing the decision to get my Rem....

read more