Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Fistulas.. Anyone?

Tue, August 25, 2020 11:39 PM

Has anyone had to deal and manage with any type of fistulas? I am so tired of being in pain. I am just tired of being tired. Any suggestions, I need a surgeon but my mediciaid is giving me the run around, gives me one provider and that provider doesn't even accept the medicaid. I am trying to keep my head up and my emotions down. This these fistulas are brining my down slowly. Just want to know if anyone else has gone or is going through with dealing with them.

SKinney79
Joined Aug 25, 2020

Mon, October 05, 2020 6:48 PM

Reply posted for SKinney79.

Yup, been there and thought I was going to pass out from the pain.

you're going to think this is crazy but there is an easy, cheap and pain free solution. Orajel maximum strength instant relief jell. The stuff used for toothache pain that you put on your gums.

smear it liberally on your rectum and try to get it up inside the rectum as well as soon as you get the urge to go, it stops the pain instantly. It's safe to use and there are no side effects.

Hope you feel better soon.

VB1986
Joined Oct 5, 2020

Tue, September 01, 2020 10:03 AM

Reply posted for Ptomb.

I have several fistulas. My colorectal surgeon installed statins or what I refer to as drains. They work pretty well.. The last one was installed on Halloween, it's still draining, but not near as much.

charbs
Joined Oct 31, 2016

Tue, September 01, 2020 6:19 AM

Reply posted for SKinney79.

I have a fistula and it is very hard day to day. With the pain. I had first Entyvio infusion yesterday. Humira. Cimzia. Stelara did not work. I had a severe delayed reaction to Remicade. I have high hopes for Entyvio. Prednisone always works to help the inflammation. I have severe Crohns in lower colon, rectum, anus. Rectovaginal fistula. It's not easy to talk about. But it can be debilitating. I still work as much as possible and try to just keep going. Take a day at a time. Wish you well. I don't mind discussion about it.

Ptomb
Joined Oct 6, 2019

Tue, September 01, 2020 6:19 AM

Ptomb
Joined Oct 6, 2019

Related Topics

Starting Remicade Infusio...

shannonmiller
Joined Feb 20, 2023

I have Ulcerative colitis, am experiencing a bad f....

read more

Biologic- How to get it c...

orthopt2003
Joined Oct 8, 2021

Hello. My daughter 10 years old after almost 18 mo....

read more

Starting ENTYVIO Infusion...

jabberwocky
Joined Jul 28, 2023

Hello. I’m new to the C&C community and ....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with CCFA.org and is supported by an educational grant from AbbVie.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.