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Entyvio or Stelara


Thu, December 03, 2020 3:50 AM

After having my UC kept under control for about 25 years with 6MP my GI is concerned about changing liver levels in my blood. He wants to switch me to Entyvio or Stellara. Curious as to how others did with either of these. Thanks 

FPO TerriLF
Joined Nov 25, 2020

Sat, December 12, 2020 11:50 PM

Reply posted for TerriLF.

My son switched to Entyvio after 6 years on Remicade -- he went from feeling like he did not have a chronic illness to feeling like he had a chronic illness.  Inflammation levels are slowly and steadily rising after being in clinical remission on Remicade for 3 years.  The first 8 months were frought with frequent sinus infections -- one of the more common side effects.  Peripheral joint pain appeared as well,  Significant thinning of hair -- this appears to be a reported side effect but when you ask doctors they don't appear to know anything about it.  Frustrating. 

A friend of mine is also on Entyvio -- switched from Humira which wasn't working for him.  Entyvio doesn't appear to be working, either.  Treatment roulette.

Goodluck!

FPO Isa
Joined Jan 9, 2020

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