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Please help! No meds are working for UC

Sat, April 24, 2021 4:26 PM

My now-22-year-old son was diagnosed w/ UC in 2017. Since then, he's tried Entyvio, Remicade, Xeljanz, and now Stelara (not to mention Uceris and Melasomine as supplemental meds), all to no effect. The only things that have hellped have been Prednisone and steroid enemas (esp the latter). The enemas recently put him into remission for the first time, and since he was just a few injections in w/ Stelara (every 4 weeks), we thought he'd turned a corner. Dr. has him slowly tapering off the enemas, and within the first week of not doing them every day, all his symptoms returned. 

Has medication failed anyone else, and what did you do? We're frustrated and desperate. Thank you.

FPO Melle
Joined Apr 24, 2021

Fri, August 20, 2021 11:25 AM

Reply posted for Melle.

I am on Humira and it was a life saver! I had to take prednisone for a month first while taking Humira at the same time. I think prednisone got me to remission and Humira has kept me there ever since. I've been on it several years, only had one flare up where I had to take prednisone again but that was the only time. 

FPO bdestefano87
Joined Aug 20, 2021

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