Our Stories

These special people inspire us with laughter and wisdom. Read their personal stories — or share one of your own.

Crohns

I have a 19 year old freshman in college who talked me into even come to this page. She is doing a project regarding Crohn’s and said “mom maybe this is a good idea to maybe help someone else who is suffering with this disease or maybe it could help you”.  In 2005 amongst raising 3 small girls and in nursing school I started having this problem with eating. Every time I would put food in my mouth I would instantly get nauseated and throw up. I became so weak and dehydrated that I couldn’t barely move or get up.  I had these awful right abdominal pain and Ibuprofen was my drug of choice (which I now know was a big mistake 😩).  I finally got diagnosed with something I never even heard of called Crohn’s Disease. I was so confused and naive about what path my life would take because of this silent but terrible disease would do to not only me but my 3 babies and husband. I would go through days of crying in pain, not able to attend events because I couldn’t get out of bed, and just literally hating my life. I was going through losing weight to gaining so much weight from the steroids to being told that I needed to go to an gastro specialist to look into having an resection because my disease was so bad. I cried and cried and told my husband that I couldn’t live like that because not only would I probably end up with a colostomy I wouldn’t be able to continue being a nurse. How was I going to raise my children if I couldn’t even work?  When we drive those 3 hours to see the specialist she gave me hope. She started me on Humira and told me she would do whatever she could to help me avoid surgery. As of now she has kept her promise. This disease is so tricky and so scary that half the time when I have flares I feel like I am forced to spend my time convincing others that it is real.  Everyday is a challenge and a struggle particularly because it is so unpredictable. I just wish when I was diagnosed there was more education regarding the struggle but also that there is others who are out there traveling this same road. 
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