August 2017, I was finally diagnosed with something that would change my life forever. From nausea, to extreme stomach pains, to bloody stools, to unbearable diarrhea I thought I would never find any sort of relief. I had seen multiple specialists that thought that I just had an underlying condition that always made me sick to my stomach but no one had an actual diagnosis until I saw a doctor a little ways from home. I had multiple colonoscopies and lots of blood work, and several EGD's. After having all these tests the doctor then told me I had the marker for Crohns. At the time he didn't know exactly how bad it was. After one colonoscopy he explained I had already had lots of scaring in my colon, which is very unusual for someone my age.
We tried multiple over the counter medications that were supposed to help these included, mesalamine, protonix, steroids (prednisone), uceris, rantidine and many more that I can't think of at the moment. I have been back and fourth weight wise because sometimes I get so sick it causes me to loose weight. I have been on Prednisone constant since August, so needless to say gaining weight is the least of my worries at the moment. I can look at the food and gain the weight. I have gained about 20 pounds since August because of constantly being on steroids, which is the only medication therapy that has worked for me. My B12 levels and potassium are also constantly low. The doctor explained I had ulcers in my small intestine that are absorbing the nutrition I need so therefore I had to go on B12 injections. The pain and all the other symptoms have become almost unbearable so the doctor finally decided to go the biological route with my treatment. My Humira injections that I will be giving to myself at home should arrive sometime next week. I also stay dehydrated which the physician says is totally normal for someone with my condition. I look to social media as a way to connect with others that share the same condition I have. It makes things a whole lot easier emotionally when someone knows exactly how you feel.
This website is associated with CCFA.org and is supported by an educational grant from AbbVie.
Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!
Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.
Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.
Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.
Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.
Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.
Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.
Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.
Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.
Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.
Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing email@example.com.
Questions or concerns? Please feel free to email us at firstname.lastname@example.org with any questions or concerns. We want you to feel comfortable here.
Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.
Thank you! The Crohn's & Colitis Community is successful because of members like you!
Thanks! The Crohn's & Colitis Community Team
*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.