Our Stories

These special people inspire us with laughter and wisdom. Read their personal stories — or share one of your own.

Unwanted Flames

August 2017, I was finally diagnosed with something that would change my life forever. From nausea, to extreme stomach pains, to bloody stools, to unbearable diarrhea I thought I would never find any sort of relief. I had seen multiple specialists that thought that I just had an underlying condition that always made me sick to my stomach but no one had an actual diagnosis until I saw a doctor a little ways from home. I had multiple colonoscopies and lots of blood work, and several EGD's. After having all these tests the doctor then told me I had the marker for Crohns. At the time he didn't know exactly how bad it was. After one colonoscopy he explained I had already had lots of scaring in my colon, which is very unusual for someone my age. 

We tried multiple over the counter medications that were supposed to help these included, mesalamine, protonix, steroids (prednisone), uceris, rantidine and many more that I can't think of at the moment. I have been back and fourth weight wise because sometimes I get so sick it causes me to loose weight. I have been on Prednisone constant since August, so needless to say gaining weight is the least of my worries at the moment. I can look at the food and gain the weight. I have gained about 20 pounds since August because of constantly being on steroids, which is the only medication therapy that has worked for me. My B12 levels and potassium are also constantly low. The doctor explained I had ulcers in my small intestine that are absorbing the nutrition I need so therefore I had to go on B12 injections. The pain and all the other symptoms have become almost unbearable so the doctor finally decided to go the biological route with my treatment. My Humira injections that I will be giving to myself at home should arrive sometime next week. I also stay dehydrated which the physician says is totally normal for someone with my condition. I look to social media as a way to connect with others that share the same condition I have. It makes things a whole lot easier emotionally when someone knows exactly how you feel.

Thanks & God Bless.
Story Author Image


Related Stories

Taking Control of Your Di...

Author Image hbbaum
Joined May 14, 2018
During the winter of 2013, I developed Crohn’s disease, and I was hit with a wave of uncertainty, anxiety, and utt... read more

I Got Sick of Keeping My ...

Author Image
I'm an independent filmmaker in New York. I recently launched a Kickstarter campaign for a short sci-fi film I wrote... read more

Life partner

Author Image
Hi my name is Noha I am Egyptian was diagnosed with Crohn's in 2010 after 4 years of suffering. As Crohn's&... read more